Editor's Note: I first published this 2 years ago and I wish that I could tell you that a tremendous amount has changed for the better, but I can't. I can tell you that some things have changed and some of it is better, and that is enough. Being a parent of a special needs child, you learn and appreciate that every little thing matters and that it is all wonderful.
Hi Friends & Family,
I know that we will be visiting each other soon and I thought this would be a helpful note for you to have.
A lot of you know that I sometimes do things differently, and it can really make my sisters mad at times too, but there are reasons for this.
My parents tell me I am on the Autistic Spectrum, although I am not sure exactly what that means, it may make sense to you. I don't learn the same way others do and I also am affected differently by all the things going on around me in ways that don't affect you. All of my senses work in different ways and I can't really express myself like you can.
The Holiday season is probably one of the toughest times for me. Large crowds and lots of people can be very overwhelming, the noise makes me want to cover my ears! I do not really like all the activity at once. I sometimes do not know where to look or listen when there is so much going on. You may think I am ignoring you; I am not. I am just trying make myself comfortable. I am not trying to be rude, or bratty, I need to find ways to cope with all of this and sometimes I focus on one thing to get through it. If I begin to sing, it may just be my way to feel comfortable.
Try to be patient with me, I know it is unfamiliar, it is for me too. I wish it could be different. Sometimes I know what I want to say and I just can't get it out. Autism is a pretty confusing thing to have, there are so many variations, some kids can't talk at all, others can have a conversation with you and answer your questions. My parents really want me to be able to do that someday too! Sometimes I say things that may not make sense to you, I do a lot of TV talk, not sure why, but it is one of the quirky things I do.
It is very hard.
Don't mind me if my mom or dad give me a computer to play with or my DSI, I need to have a way to escape, this helps calm me down and gives me some comfort. Don't think my parents have no control over me, they know exactly what to do.
I may try to sit with you for dinner, don't expect me to eat all the food you have, I may not even try any of it. I am not great at sitting still for long and the smells could be tough too. My parents know you really want to have us all together and they wish it could be different, but this is one of the things that I struggle with. Don't let it ruin your meal or lecture my parents, we are used to it. Go on and enjoy. I can sense when you are uncomfortable and I understand all you are saying. I am very sensitive and tuned in to all going on. I really want to be a part of this all, I just have to do it a little differently.
Please don't tell others to ignore me or leave me alone, I am aware of all that is going on, I just have to figure out how to make myself fit. I am a lot of fun, I am kind and I love to laugh! I am a pretty neat kid and may even teach you something about the computer, take a few minutes to try to do it my way, maybe I will teach you something. :)
I am so lucky to have my parents, they love me so much and work so hard every day to help me with the skills I need to learn. Don't judge them, if you've been lucky enough to have kids that follow the typical path, you do not know how tough I can be at times. My sisters have to put up with so much because I don't understand things the way they do. They deserve an extra present!
I really hope this helps you understand a little bit more about what I am thinking and doing.
Merry Christmas,
Love
Marky
